You are not Alone

Describing Meniere’s disease to someone else can be a frustrating experience.  I remember once trying to explain it to a family member and they replied, “Oh, I get it, you have dizzy spells every now and then.”  I wanted to scream, “No, it is far far worse than that.”  But I did not.  I quickly came to the conclusion that the only ones that really understand Meniere’s disease are others suffering from the same illness.  Since then, I have not really tried to explain to anyone what it is like to have Meniere’s.  I’m just not successful conveying what a Meniere’s disease sufferer experiences.

Whether you share your Meniere’s experiences with others or not, it is common to feel alone in your battle to manage the symptoms.  Over at WolframAlpha,  they claim that 159,300 US patients are diagnosed with Meniere’s disease a year.  That number varies with every different source, but the bottom line is that there are plenty of people suffering from Meniere’s disease.

Along with us commoners are plenty of famous people who have suffered or are suffering from Meniere’s disease

  • Vincent Van Gogh – Dutch artist
  • Alan Shepard – American astronaut
  • Ryan Adams – popular singer
  • Peggy Lee – singer/actress
  • Emily Dickinson – poet
  • Katie Leclerc – actress and star of the current series “Switched at birth”
  • Guy Kawasaki – entrepreneur and author
  • Kristin Chenoweth – actress and star in “Glee”
  • Jonathan Swift – author
  • Les Paul – guitarist and inventor of the solid-body electric guitar

Meniere’s disease does not discriminate.  There are sufferers in all places.  Take heart.  You are not alone in your battle.

Comments

  1. I got it about six years ago and it has been an absolute ordeal the entire time. The strange thing to me is that it changes often. When I first got it, I would get very nauseous and sometimes fall down. The world around would spin for a few minutes and then it was impossible to walk. Years later, I would say it has gotten both better and worse. The “worse” is that it occurs more frequently. The “better” is that there is rarely vertigo; it doesn’t knock me down; I rarely get nauseous, and even when I have it, I can manage to walk from one place to another.

    Not sure why I’m even writing other than it’s cathartic. People here tend to ignore me or fail to listen so it’s nice to simply “talk” about it.

    Thanks.

    • Mark, Thanks for sharing. One thing I have learned over the years is that I can’t find two Meniere’s sufferers that have the exact same symptoms. We all suffer in slightly different ways and that it behaves a little different for everyone over time. Good Luck…and feel free to talk way if it helps at all

  2. I heard A rumor. This will end, all by itself,out of nowhere. Is it true?

    • From various ENT’s, I have heard the same. They refer to is as burnout. The problem is that it usually takes your hearing with it. So if the rumor is true and it does go away on its own, you may lose your hearing in that ear. For some, that is a price they are willing to pay to get eliminate those horrible attacks. Good Luck

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